Questionnaire for the assessment of subjective physical functioning

HEP-Test-Q
Beweglichkeit

Publications

The first publication of the HEP-Test-Q was related to its development, psychometric testing and validation in the year 2010.

The following publications describe the use of the HEP-Test-Q in different observational, interventional and randomised studies.

The publication No 9 describes the psychometric testing and validation of the HEP-Test-Q for children.

10. Zanon E, Tagliaferri A, Pasca1 S, Ettorre C, Notarangelo L, Biasioli C, Aru A, Milan M, Linari S, Rocino A, Gagliano F, Di Minno G, Gamba G, Santoro R, Schinco P, Marietta M, Seuser A, von Mackensen S

Physical activity improved by adherence to prophylaxis in an Italian population of children, adolescents and adults with severe haemophilia A: the SHAPE Study

Blood Transfus 2020;18(2):152-158
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9. von Mackensen S, Hilberg T, Valentino LA, Kurnik K, Khair K.

Validation of the Haemophilia & Exercise Project-Test-Questionnaire (HEP-Test-Q) — An instrument for the assessment of subjective physical functioning in children with haemophilia.

Haemophilia 2018; 24(6):888-895
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8. Khair K, Holland M, Bladen M, Griffioen A, McLaughlin P, von Mackensen S.

Study of physical function in adolescents with haemophilia:
The SO-FIT study

Haemophilia 2017; 23(6):918-925
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7. Runkel B, von Mackensen S, Hilberg T.

RCT - subjective physical performance and quality of life after a 6-month programmed sports therapy (PST) in patients with haemophilia.

Haemophilia 2017;23(1):144-151.

6. von Mackensen S, Harrington C, Tuddenham E, Littley A, Will A, Fareh M, Hay CR, Khair K.

The impact of sport on health status, psychological well-being and physical performance of adults with haemophilia.

Haemophilia 2016;22(4):521-30.
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5. Czepa D, von Mackensen S, Hilberg T.

Haemophilia & Exercise Project (HEP): the impact of 1-year sports therapy programme on physical performance in adult haemophilia patients.

Haemophilia 2013;19(2):194-9.
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4. Khair K, Littley A, Will A, von Mackensen S.

The impact of sport on children with haemophilia.

Haemophilia 2012;18(6):898-905.
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3. von Mackensen S, Eifrig B, Zäch D, Kalnins J, Wieloch A, Zeller W.

The impact of a specific aqua-training for adult haemophilic patients - results of the WATERCISE study (WAT-QoL).

Haemophilia 2012;18(5):714-21.
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2. Czepa D, von Mackensen S, Hilberg T.

Haemophilia & Exercise Project (HEP): subjective and objective physical performance in adult haemophilia patients - results of a cross-sectional study.

Haemophilia 2012;18(1):80-5.
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1. von Mackensen S, Czepa D, Herbsleb M, Hilberg T.

Development and validation of a new questionnaire for the assessment of subjective physical performance in adult patients with haemophilia - the HEP-Test-Q

Haemophilia 2010;16(1):170-8.
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